Evenimente

  • Ziua Federației Asociațiilor Bolnavilor de Cancer

    Eveniment

    Perioada 16 – 18 Decembrie 2022, Brașov

    Ziua Federației Asociațiilor Bolnavilor de Cancer (FABC).
    Evenimentul marchează lupta împotriva resemnării și efortul susținut pentru a învinge boala și sistemul.

    Strategie

    De peste 19 ani, FABC, prin intermediul asociațiilor membre, creează mediul necesar pentru a reuni pacienți și voluntari din cele 22 de asociații active, în sensul realizării și menținerii unei rețele puternice – o voce reală a pacienților pentru a reprezenta nevoile acestora, inclusiv reconfirmarea atitudinii pozitive în lupta cu boala și efectele acesteia la modul general.

    Obiective atinse

    • Punctarea tuturor aspectelor ce țin de facilitarea întâlnirilor pacienților din asociațiile membre FABC (grupuri de suport, prezență în spitalele / secțiile oncologie).
    • Număr de pacienți prezenți la eveniment – 110 din 17 asociații constituite.
    • Centralizarea problemelor punctate de pacienți, actualizarea situației cu privire la accesul la terapiile inovatoare dar și la terapiile comune, accesul la investigații medicale pentru acces la terapia personalizată, actualizarea agendei publice FABC privind demersurile pentru corectarea problemelor pentru anul 2023.
    • Evaluarea si creșterea capacitații Asociațiilor membre în sensul îmbunătățirii serviciilor adresate pacienților și aparținătorilor pe plan local.
    • Distribuire pachete cu materiale educaționale – ultimele ghiduri si colecții de informații medicale spre utilizare pe plan local de către asociațiile membre.
    • Prezentare și actualizare Plan de Activități pentru 2023
    • Discuții referitoare la Planul Național de Prevenire și Combatere a cancerului.

    Comunicat de Presă : ÎNCĂ UN AN CÂȘTIGAT DE PACIENȚII CU CANCER ÎN LUPTA CU BOALA, DAR ȘI A UNUI PLAN NAȚIONAL DE COMBATERE ȘI CONTROL AL CANCERULUI!

    Sponsori

  • 02 – 05 iunie

    Vor susține prezentări științifice / legislative / holistice

    Live pe pagina de Facebook FABC si Pacientul in Direct

    În perioada 02 – 05 iunie 2022, Federația Asociațiilor Bolnavilor de Cancer organizează în format hibrid, sub Înaltul Patronaj al Președintelui României, Conferința Națională dedicată pacienților cu cancer,  ediția a – XIV – a, cu tema «Ziua Supraviețuitorului de Cancer».

    Evenimentul urmărește informarea pacienților cu cancer din România despre teme specifice de interes, precum și acțiunile pentru promovarea și apărarea drepturilor acestora. Aceasta acțiune a FABC a devenit o “tradiție” datorită solicitărilor pacienților privind organizarea constantă, reprezentând un instrument de lucru potrivit în relația cu decidenții, medicii și ceilalți factori implicați în acest domeniu. Evenimentul constituie un moment de referința și din perspectiva networkingului, prin prisma faptului ca Asociațiile de Pacienți membre își prezintă activitățile proprii, prezintă problemele din teritoriu cu care se confruntă pacienții.

    Evenimentul are loc in contextul adoptării noii legi a supraviețuitorului de cancer, care presupune o serie de acțiuni de conștientizare a factorilor de risc ai cancerului, dar, cel mai important, punerea pe agenda publică a tutoror aspectelor ce țin de oncologie – screening, diagnostic precoce, tratament, consiliere.

    Vineri 03 iunie

    09.00 – 12.00·        Networking cu liderii asociațiilor membre FABC (Înregistrare participanți, distribuire materiale informative)

     

    ·        Prezentare Proiecte și Perspective 2022-2023.

    ·        Raportare activitate generală. Aspecte financiare

    ·        Chestionar feedback – probleme pacienți (platforma live)

      
    13.00-14.00Pauza
      
    14.00 – 14.15Deschiderea Conferinței

     

    Cezar Irimia, președinte FABC

    Prof. Dr. Alexandru Rafila – Ministrul Sănătății (prin intervenție Zoom)

    14.15 – 15.15Importanța efectelor tehnicilor de terapie psihosomatică aplicate pacienților oncologici în scopul îmbunătățirii calității vieții;

     

    Psih. Clinician Ramona Schenker; Nutriționist Clinician Barzu Raluca;

      
    15.15 – 15.25Pauza 
      
    15.25 – 15.45Consilierea și Navigarea pe tot parcursul terapeutic al pacientului oncologic

     

    Dr. Antoanela Pop, FABC

    15.45 – 16.05Compensarea medicamentelor în România

     

    Rozalina Lapadatu, vicepreședinte Alianța Pacienților Cronici din România și președinte Asociația Pacienților cu Afecțiuni Autoimune

    16.05 – 16.20Importanța brahiterapiei în cancerul de col uterin – considerații terapeutice și economice

     

    Dr. Daniela Sandu, medic specialist radioterapie MedEuropa Brașov

    16.20 – 16.40Importanta ECPC in ecuația UE, implicit FABC

     

    Vasile Ianovici, Membru ECPC

    16.40 – 17.00Cuvântul liderilor de asociații, medici – Discuții Libere
      
      

    Sâmbătă 04 iunie

    Sesiune Dimineața 

    08.30 – 08.35Deschiderea lucrărilor științifice, prezentarea agendei

     

    Cezar Irimia, președinte Federația Asociațiilor Bolnavilor de Cancer

    08.35 – 09.45Cuvântul Autorităților:

     

    • Conf. Dr. Diana Loreta Păun – Consilier Prezidențial, Administrația Prezidențială

    • Dr. Andrei Baciu – Secretar de Stat, Ministerul Sănătății

    Nicoleta Pauliuc – Senator, inițiator propuneri legislative în domeniul oncologiei, Președintele Comisiei pentru apărare, ordine publică şi siguranță națională din Senat

     

    Prof. Dr. Patriciu Achimaș-Cadariu, Coordonator Grup de Lucru din Parlamentul României privind Planul Național de Combatere și Control al Cancerului

     

    • Prof. Dr. Daniel Coriu – Președinte, Colegiul Medicilor din România (prin intervenție Zoom)

     

    Florin Ciocan, Președinte / Dr. Sorin Ungureanu, Director General Adjunct – Autoritatea Națională de Management al Calității în Sănătate (ANMCS)

    09.45- 10.15Accesul la inovație și studii clinice ale pacienților oncologici din România

     

    Conf. Dr. Michael Schenker – Președinte Comisia de Oncologie din Ministerul Sănătății

    10.15 – 10.35Medicina personalizată este aici (prin intervenție Zoom)

     

    Dr. Marius Geantă, Președinte și Co-fondator Centrul pentru Inovație în Medicină

    10.35 – 11.00Accesul la inovație din perspectiva industriei farmaceutice

     

    Dan Zaharescu – Director Executiv,

    Asociația Română a Producătorilor Internaționali de Medicamente (ARPIM)

    11.00 – 11.20Testările genetice și Tratamentul personalizat

     

    Conf. Dr. Maria Victoria Olinca, Medic primar Anatomie patologică

      
    11.20 – 11.30 Pauza
      
    11.35 – 12.10Abordarea din punct de vedere chirurgical al cancerul bronhopulmonar

     

    Dr. Mugur Bosânceanu, Spitalul de Oncologie Monza

    12.10 – 12.40Echipa multidisciplinară pentru asigurarea unui tratament personalizat fiecărui pacient oncologic

     

    Dr. Ioana Luca, Medic Primar Oncologie, Spitalul de Oncologie Monza

    12.40– 13.00Cancerul Pulmonar (prin intervenție Zoom)

     

    Prof. Dr. Laura Mazilu

    13.00 – 14.00 Pauza

    Sesiunea de după-amiază

    14.00 – 14.20Onco-planificarea și rolul în creșterea supraviețuirii

     

    Gabriela Trifon, Communications & CSR Manager – MSD România

    14.20 – 14.40Noi tehnici in tratarea cancerului hematologic – terapia CAR-T

     

    Dr. Lavinia-Eugenia Lipan, Medic specialist hematologie Transplant Medular

    Institutul Clinic Fundeni

    14.40 – 15.00Rolul Medicului de Familie in diagnosticarea precoce al cancerului

     

    Dr. Gindrovel Dumitra, medic primar Medicină de Familie (intervenție audio-video înregistrare)

    15.00 – 15.20Rolul Medicului de Familie in monitorizarea pacientului oncologic
    15.20 – 15.50·        Tehnici avansate în chirurgia cancerului colorectal de la DaVinci la HIPEC și chirurgia metastazelor hepatice.

     

    ·        Chirurgia extremă a “pelvisului înghețat” de cauză rectală, prostatică sau vezicală

    Dr. Bogdan Moldovan și Dr. Radu Pisică, Spitalul Sfântul Constantin Brașov

      
    15.50 – 16.00Pauza
      
    16.00 – 16.30Drepturile si Obligațiile Pacienţilor, Aspecte Juridice – încadrarea în grad de handicap

     

    Conf. Univ. Av. Dr. Dan Cimpoeru

    16.30 – 16.50Importanța serviciilor de îngrijire paliativă 
    16.50 – 17.00Chestionar Satisfacție – Conferință, încheierea lucrărilor
  • Dezbatere Manifest privin Controlul Cancerului Pulmonar

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    In data de 24 noiembrie 2021, Federatia Asociatiilor Bolnavilor de Cancer, cu sprijinul Alianta Pacientilor Cronici din Romania, Asociatia Bolnavilor de Cancer, MSD Romania, a organizat dezbaterea dedicata cancerului pulmonar in Romania.

    La aceasta actiune au fost abordate mai multe subiecte: Cum a fost limitat accesul la bronhoscopii în perioada pandemiei și impactul diagnosticării tardive în cancerul pulmonar, care sunt noile politici de sănătate pentru eliminarea barierelor de access la diagnostic și tratament în cancerul pulmonar.

    Urmariti inregistrarea dezbaterii.

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    Descarca – Mass-Media Tool Kit

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    Sponsori FABC

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padding_right=”” padding_bottom=”” padding_left=”” fusion_font_family_button_font=”” fusion_font_variant_button_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”” stretch=”default” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” icon=”” icon_position=”left” icon_divider=”no” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]Agenda Eveniment[/fusion_button][fusion_separator style_type=”none” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” flex_grow=”0″ top_margin=”20px” bottom_margin=”20px” width=”” alignment=”center” border_size=”” sep_color=”” hue=”” saturation=”” lightness=”” alpha=”” icon=”” icon_size=”” icon_color=”” icon_circle=”” icon_circle_color=”” /][fusion_button link=”https://fabc.ro/wp-content/uploads/2022/02/Comunicat-de-presa-FABC-ZMLC2022.pdf” title=”” target=”_blank” link_attributes=”” alignment_medium=”” alignment_small=”” 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    Câteva declaratii importante ale speakerilor implicați:

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    Dr. Andrei Baciu, Secretar de Stat, Ministerul Sănătății
    Pași de urmat în implementarea Planului Național de Cancer

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” hue=”” saturation=”” lightness=”” alpha=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    „Este un plan extraordinar de din bine structurat, detaliat și crează toate premizele de a atinge standarde europene. Acum sunt cei mai importanți pași de implementare. V-aș invita la o discuție punctuală că să gândim pt următoarele saptamani cum să începem să accelerăm implementarea acestui plan. Este esențial unde ne dorim să ajungem, însă pacientii au nevoie de lucruri concrete și se întâmplă punând în aplicare ceea ce am gândit. E o muncă în echipa și spiritul acestei munci trebuie continuat. Pacienții au avut un rol definitoriu și îmi doresc să aibă un rol central în continuare. Ziua diagnosticului pentru pacientul cu cancer să fie transromat din condamnare la moarte, într-o boală cronică. Tehnologia și medicina permit acest lucru, însă e de datoria noastră să facem și în Romania că aceste lucruri să devină realitate. Dar am inceredere că putem să ajungem la situații concrete pentru pacientii din România”.

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    Adela Cojan – președinte CNAS
    Perpectiva privind bugetarea PNC

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    „Cred că ceea ce s-a stipulat în Planul de Cancer referitor la depistarea precoce, la partea de prevenție, la tratamente curative moderne, la reducerea timpilor diagnostic-tratament, suportul psiho-emoțional și psiho-nutrțional, la serviciile de recuperare și paliație vor face diferența în așa fel încât cancerul va putea fi încadrat nu doar ca o boală vindecabilă dar și ca o boală prevenibilă.
    Eu cred că introducerea în PNC a testărilor biomarkerilor ne-ar putea ajuta la stratificarea mai bună a riscului populației astfel încât să asigurăm tratamentul la timp și corect. Tocmai de aceea, măsurile noastre au prevăzut ca pentru maladia canceroasă finanțarea furnizorilor de servicii de investigații paraclinice de înalta performanță să poate fi suplimentată prin acte adiționale. Prin hotărârea de guvern nr 80 din 13 ianuarie 2022 am făcut o modificare la contractul cadru astfel încât programarea acestor pacienți să fie obligatoriu a fi făcută în termen de maxim 5 zile că să scurtăm timpul de la diagnosticare până la tratament. Sunt comvinsă că anul acesta și anul viitor vor reprezenta anii faptelor și nu anii vorbelor în ceea ce privește combaterea acestei maladii.”

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    Prof. Dr. Patriciu Achimaș-Cadariu – Comisia de Sănătate din Camera Deputaților
    Modalități privind implementarea Planului Național de Cancer

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” hue=”” saturation=”” lightness=”” alpha=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    „Legea votată ieri în Parlament și în Camera Deputaților care sprijină pacienții prin sprijinul aparținătorilor este doar o mâna mică de ajutor în ideea implementării Planul Național de Cancer. Circuitul pacientului oncologic e atât de anevoios încât fără aparținători mulți dintre ei nu se descurcă și de aceea cred că această lege ajută cel puțin pe termen scurt, cel puțin până se va articula întregul sistem. Pe termen lung sigur că sunt măsurile care se pot lua prin decizii hotărâte. Degeaba o să avem registrul național dacă lumea nu va raporta cazurile. E o măsură care nu ține de bani, ci de organizare. Articularea între Minister, Institutul Național de Sănătate Publică, CNAS și toți ceilalți actori sunt chestiuni de organizare. Apoi vine partea de finanțare și avem acest interval de timp până în 2026 care nu e foarte lung. Dedicați fiind acestui subiect, cred că trebuie să urmărim acest plan și să-l susținem cu o lege a cancerului”.

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    Nicoleta Pauliuc – Senator
    Propuneri legislative în domeniul oncologiei – apărarea drepturilor pacienților

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” hue=”” saturation=”” lightness=”” alpha=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    „Nu mai e doar un plan pe hârtie, ci am făcut pași importanți. Două proiecte legislative sunt deja aprobate, urmează să aducem în Parlament și planul că să-l votăm astfel încât pacienții oncologici să aibă ceea ce le trebuie. Să le dăm speranța, e important că ei să vadă că prin activitatea noastră au speranța că acest război se transformă într-o boală cronică. Odată ce am aprobat acest proiect de lege nu înseamnă că el va fi brusc implementat pentru că trebuie să vedem exact care sunt cele mai bune soluții. Sunt foarte multe probleme pe care eu în perioada următoare le voi aduce în dezbateri în agenda Parlamentului. Pe 17 februarie vom avea o nouă dezbatere cu alte proiecte care încearcă să anuleze acele discriminări ale supraviețuitorilor de cancer în relația directă cu societatea”.

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filter_blur_hover=”0″]https://fabc.ro/wp-content/uploads/2022/02/michael-schenker-4feb2022fabc.jpg[/fusion_imageframe][fusion_title title_type=”text” rotation_effect=”bounceIn” display_time=”1200″ highlight_effect=”circle” loop_animation=”off” highlight_width=”9″ highlight_top_margin=”0″ before_text=”” rotation_text=”” highlight_text=”” after_text=”” title_link=”off” link_url=”” link_target=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” content_align_medium=”” content_align_small=”” content_align=”left” size=”2″ animated_font_size=”” fusion_font_family_title_font=”” fusion_font_variant_title_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”” text_color=”” hue=”” saturation=”” lightness=”” alpha=”” animated_text_color=”” text_shadow=”no” text_shadow_vertical=”” text_shadow_horizontal=”” text_shadow_blur=”0″ text_shadow_color=”” margin_top_medium=”” margin_right_medium=”” margin_bottom_medium=”” margin_left_medium=”” margin_top_small=”” margin_right_small=”” margin_bottom_small=”” margin_left_small=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” margin_top_mobile=”” margin_bottom_mobile=”” gradient_font=”no” gradient_start_color=”” gradient_end_color=”” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ highlight_color=”” style_type=”underline dotted” sep_color=”” link_color=”” link_hover_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    Conf. Dr. Michael Schenker – președinte Comisia de Oncologie din Ministerul Sănătății
    Viziunea Comisiei de Oncologie privind normele de implementare PNC

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” hue=”” saturation=”” lightness=”” alpha=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    „Toți trebuie să lucrăm la o cât mai bună aplicare a acestui plan. O parte dintre activitățile din PNC trebuie lansate cât mai rapid. Trebuie să cunoaștem ce resurse avem deja la dispozite și să vedem ce mai este necesar. Nu putem întârzia cu acești pași pentru că problemele pe care le avem sunt foarte mari. Trebuie să ne organizăm și să gândim și alte acte normative. Sunt două legi deja create și lansate prin Parlament”

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sticky_max_width=”” skip_lazy_load=”” lightbox=”no” gallery_id=”” lightbox_image=”” lightbox_image_id=”” alt=”” link=”” linktarget=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” max_width=”” align_medium=”none” align_small=”none” align=”none” mask=”” custom_mask=”” mask_size=”” mask_custom_size=”” mask_position=”” mask_custom_position=”” mask_repeat=”” style_type=”” blur=”” stylecolor=”” hue=”” saturation=”” lightness=”” alpha=”” hover_type=”none” margin_top_medium=”” margin_right_medium=”” margin_bottom_medium=”” margin_left_medium=”” margin_top_small=”” margin_right_small=”” margin_bottom_small=”” margin_left_small=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” bordersize=”” bordercolor=”” borderradius=”” caption_style=”off” caption_align_medium=”none” caption_align_small=”none” caption_align=”none” caption_title_medium=”” caption_title_small=”” caption_title=”” caption_text=”” 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margin_left_medium=”” margin_top_small=”” margin_right_small=”” margin_bottom_small=”” margin_left_small=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” margin_top_mobile=”” margin_bottom_mobile=”” gradient_font=”no” gradient_start_color=”” gradient_end_color=”” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ highlight_color=”” style_type=”underline dotted” sep_color=”” link_color=”” link_hover_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    Dr. Amedeia Niță – medic primar oncologie medicală, Spitalul Județean de Urgență Ploiești
    Problema pacientului oncologic în perioada pandemiei și importanța continuării tratamentului oncologic

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” hue=”” saturation=”” lightness=”” alpha=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” font_size=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    „Pandemia Covid a reprezentat o mare încercare. Acești doi ani au adus o mortalitate destul de crescută în rândul pacienților oncologici pentru că ne-am confruntat cu această frică vizavi de ce înseamă o infecție cu acest virus. Lucrurile au intrat pe un făgaș normal, ne-am asumat că ne putem îmbolnăvi și trata și că pacientiii trebuie sfătuiți să vină în mod constant la tratamente și să-și depisteze boala la timp. Ultima parte a anului trecut a însemnat un val de cazuri grave și foarte grave, pacienți depistați în stadii tardive, iar impactul psihologic a fost unul major. Au fost studii efectuate pe pacienți oncologici în SUA care arată că mai mult de jumătate din pacienții oncologici la nivelul întregii lumi și-au redus numărul de vizite la medic, iar la nivel european 30% dintre pacienți și-au modificat schemele de tratament. Toate au determinat un tratament subliminal al pacienților noștri. Este important că pacienții să înțeleagă că indiferent de câte valuri pandemice care vor veni, în momentul în care au simptome, nu se simt bine și au vizite programate să vină la spital. Tratamentele oncologice trebuie administrate la timp că să fie eficiente”.

    [/fusion_text][/fusion_builder_column][/fusion_builder_row][/fusion_builder_container]

  • Ziua Supraviețuitorului de Cancer 2021

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    CUM SE DESFAȘOARĂ ACUM

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” font_size=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    În data de 11 decembrie, începând cu ora 10, va avea loc o discuție în direct pe platforma Zoom și Facebook despre sumarizarea tuturor aspectelor ce au fost specifice acestui an, care au fost problemele și cum va arăta oncologia în 2022 – ce soluții sunt pentru îmbunătățirea traseului terapeutic al pacientului cu cancer (acces la investigații, diagnostic rapid, acces la terapie, recuperare, reechilibrare emoțională). Prezentarea proiectelor și inițiativelor FABC în sprijinul pacienților.

    Vă invităm să să urmăriți activ acest demers al FABC. Pacienții au posibilitatea de a interacționa cu specialiștii invitați, de a adresa întrebări și de a prezenta problemele generale cu care s-au confruntat!

    [/fusion_text][/fusion_builder_column][fusion_builder_column type=”1_3″ layout=”1_1″ align_self=”auto” content_layout=”column” align_content=”flex-start” content_wrap=”wrap” spacing=”” center_content=”no” link=”” target=”_self” min_height=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” type_medium=”” type_small=”” order_medium=”0″ order_small=”0″ dimension_spacing_medium=”” dimension_spacing_small=”” dimension_spacing=”” dimension_margin_medium=”” dimension_margin_small=”” margin_top=”” margin_bottom=”” padding_medium=”” padding_small=”” padding_top=”” padding_right=”” padding_bottom=”” padding_left=”” hover_type=”none” border_sizes=”” border_color=”” border_style=”solid” border_radius=”” box_shadow=”no” dimension_box_shadow=”” box_shadow_blur=”0″ box_shadow_spread=”0″ box_shadow_color=”” box_shadow_style=”” background_type=”single” gradient_start_color=”” gradient_end_color=”” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ background_color=”” background_image=”” background_image_id=”” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=”” filter_type=”regular” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ last=”false” border_position=”all” first=”false” spacing_right=””][fusion_separator style_type=”single|dotted” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” flex_grow=”0″ top_margin=”20px” bottom_margin=”20px” width=”” alignment=”center” border_size=”” sep_color=”” icon=”” icon_size=”” icon_color=”” icon_circle=”” icon_circle_color=”” /][fusion_title title_type=”text” rotation_effect=”bounceIn” display_time=”1200″ highlight_effect=”circle” loop_animation=”off” highlight_width=”9″ highlight_top_margin=”0″ before_text=”” rotation_text=”” highlight_text=”” after_text=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” content_align_medium=”” content_align_small=”” content_align=”left” size=”2″ font_size=”” animated_font_size=”” fusion_font_family_title_font=”” fusion_font_variant_title_font=”” line_height=”” letter_spacing=”” text_shadow=”no” text_shadow_vertical=”” text_shadow_horizontal=”” text_shadow_blur=”0″ text_shadow_color=”” margin_top_medium=”” margin_bottom_medium=”” margin_top_small=”” margin_bottom_small=”” margin_top=”” margin_bottom=”” margin_top_mobile=”” margin_bottom_mobile=”” text_color=”” animated_text_color=”” highlight_color=”” style_type=”underline dotted” sep_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    OBIECTIVE

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” font_size=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” line_height=”” letter_spacing=”” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    • Presiune asupra decidenților din sănătate privind rezolvarea carențelor din programul național de oncologie și a problemelor cu care se confruntă pacienții.
    • Întărirea convingerii pacienților că nu sunt singuri și că sunt reprezentați și susținuți la nivel național de o forță – FABC.
    • promovarea FABC și a asociațiilor membre.
    • Conștientizarea supraviețuitorilor asupra importanței asociațiilor pacienților.
    • Creşterea numărului de membri la nivelul organizațiilor.
    • Conștientizarea instituțiilor statului și a opiniei publice asupra importanței și rolului asociațiilor de pacienți.
    • Întărirea alianțelor medici-pacienți, ca un prim pas către normalitate.
    • Sprijinirea pacienților in accesarea asociațiilor de pacienți.

    [/fusion_text][/fusion_builder_column][fusion_builder_column type=”1_3″ layout=”1_1″ align_self=”auto” content_layout=”column” align_content=”flex-start” content_wrap=”wrap” spacing=”” center_content=”no” link=”” target=”_self” min_height=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” type_medium=”” type_small=”” order_medium=”0″ order_small=”0″ dimension_spacing_medium=”” dimension_spacing_small=”” dimension_spacing=”” dimension_margin_medium=”” dimension_margin_small=”” margin_top=”” margin_bottom=”” padding_medium=”” padding_small=”” padding_top=”” padding_right=”” padding_bottom=”” padding_left=”” hover_type=”none” border_sizes=”” border_color=”” border_style=”solid” border_radius=”” box_shadow=”no” dimension_box_shadow=”” box_shadow_blur=”0″ box_shadow_spread=”0″ box_shadow_color=”” box_shadow_style=”” background_type=”single” gradient_start_color=”” gradient_end_color=”” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ background_color=”” background_image=”” background_image_id=”” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=”” filter_type=”regular” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ last=”true” border_position=”all” first=”false”][fusion_separator style_type=”single|dotted” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” flex_grow=”0″ top_margin=”20px” bottom_margin=”20px” width=”” alignment=”center” border_size=”” sep_color=”” icon=”” icon_size=”” icon_color=”” icon_circle=”” icon_circle_color=”” /][fusion_title title_type=”text” rotation_effect=”bounceIn” display_time=”1200″ highlight_effect=”circle” loop_animation=”off” highlight_width=”9″ highlight_top_margin=”0″ before_text=”” rotation_text=”” highlight_text=”” after_text=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” content_align_medium=”” content_align_small=”” content_align=”left” size=”2″ font_size=”” animated_font_size=”” fusion_font_family_title_font=”” fusion_font_variant_title_font=”” line_height=”” letter_spacing=”” text_shadow=”no” text_shadow_vertical=”” text_shadow_horizontal=”” text_shadow_blur=”0″ text_shadow_color=”” margin_top_medium=”” margin_bottom_medium=”” margin_top_small=”” margin_bottom_small=”” margin_top=”” margin_bottom=”” margin_top_mobile=”” margin_bottom_mobile=”” text_color=”” animated_text_color=”” highlight_color=”” style_type=”underline dotted” sep_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    ISTORIC

    [/fusion_title][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” font_size=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    Ziua Supraviețuitorului de Cancer este un eveniment ce marchează celebrarea deciziei de a trăi, de a lupta împotriva resemnării și a efortului imens pentru a învinge această boală gravă. Evenimentul a avut loc în premieră la Brașov în 19 decembrie 2004.

    Perioada de pandemie, prin restricțiile impuse, desocializează, tensionează și scade aderența la tratamente a pacienților cu cancer. Conform tradiției, am hotărât ca și în acest an să marcăm Ziua Supraviețuitorului de Cancer, și ca aceasta să se desfășoare online.

    [/fusion_text][/fusion_builder_column][/fusion_builder_row][/fusion_builder_container]

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    24 – 26 septembrie

    [/fusion_content_box][fusion_content_box title=”24 de specialiști ” backgroundcolor=”” icon=”fa-user-md fas” iconflip=”” iconrotate=”” iconspin=”” iconcolor=”” circlecolor=”” circlebordersize=”” circlebordercolor=”” outercirclebordersize=”” outercirclebordercolor=”” image=”” image_id=”” image_max_width=”” link=”” linktext=”” link_target=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    Vor susține prezentări științifice / legislative / holistice

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    Your Content Goes Here

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    Live pe pagina de Facebook FABC si Pacientul in Direct

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    În perioada 24 – 25 septembrie 2021, Federația Asociațiilor Bolnavilor de Cancer organizează în format hibrid, Conferința Națională dedicată pacienților cu cancer,  ediția a – XIII – a, cu tema «NOUTĂȚI TERAPEUTICE ÎN TRATAREA CANCERULUI ÎN ROMÂNIA».

    Evenimentul urmărește informarea pacienților cu cancer din România despre teme specifice de interes, precum și acțiunile pentru promovarea și apărarea drepturilor acestora. Aceasta acțiune a FABC a devenit o “tradiție” datorită solicitărilor pacienților privind organizarea constantă, reprezentând un instrument de lucru potrivit în relația cu decidenții, medicii și ceilalți factori implicați în acest domeniu. Evenimentul constituie un moment de referința și din perspectiva networkingului, prin prisma faptului ca Asociațiile de Pacienți membre își prezintă activitățile proprii, prezintă problemele din teritoriu cu care se confruntă pacienții.

    După o pauză de 1 an, generată de pandemie, dorim o întâlnire directă cu colegii noștri din țară pentru a discuta despre noile terapii privind tratarea cancerului dar și despre creionarea Planului Național de Oncologie la nivelul Parlamentului României.

    În ultima perioadă, pacienții cu cancer au fost și sunt în continuare în dificultate de a accesa serviciile medicale, multe tratamente lipsesc, și problemele sunt multiple. De aceea, este important să sumarizăm toate aceste aspecte în mod direct, pentru a le prezenta autorităților în vederea identificării soluțiilor.

    Cifrele evenimentului: 2 zile de conferința, 24 de specialisti care vor susține prezentări științifice / legislative / holistice, 14 asociații de pacienti cu cancer.

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    Agenda

    Vineri 24 Septembrie

    14.15 – 15.15 Cuvântul Autorităților:

    · Conf. Dr. Diana Loreta Păun – Consilier Prezidențial, Administrația Prezidențială

    · Dr. Andrei Baciu – Secretar de Stat, Ministerul Sănătății

    · Nicoleta Pauliuc – Senator, inițiator proiecte legislative în domeniul oncologiei

    · Conf. Dr. Adela Cojan, Președinte CNAS (Audio-Video Zoom)

    ·  Prof. Dr. Daniel Coriu – Președinte CMR (Video-Rec)

    ·  Prof. Dr. Viorel – Robert Ancuceanu – ANMDM (Audio-Video Zoom)

     

    15.15 – 15.25 Pauza 
       
    15.25 – 15.45 VALOAREA SOCIO-ECONOMICĂ A TRATĂRII CANCERULUI ÎN ROMÂNIA

    Prof. Univ. Dr. Rodica Zaharia, Academia de Studii Economice (ASE) din București

    15.45 – 16.05 PREZENTARE ANALIZĂ – RAPORT PROIECT FABC TESTĂRI GENETICE GRATUITE, PERIOADA 2015-2021
    Alin Bujan, Coordonator Programe FABC
    16.05 – 16.30 LEUCEMIA LIMFOCITARĂ CRONICĂ ÎN ERA TERAPIILOR ȚINTITE

    Dr. Mihaela Lăzăroiu, Medic Primar, specialitate Hematologie

    16.30 – 16.50 ROLUL INOVAȚIEI ȘI TEHNOLOGIILOR NOI ÎN A FACILITA ACCESUL PACIENȚILOR ROMÂNI LA TRATAMENT

    Prof. Dr. Cristina Ștefan

    Institutul Oncologic Prof. Dr. Alexandru Trestioreanu, București

    16.50 – 17.00 Închiderea primei zile de eveniment

    Sâmbătă 25 septembrie

    Sesiune Dimineață

     

    08.30 – 08.35 Deschiderea lucrărilor științifice, prezentarea agendei
    08.35 – 08.55 ABORDAREA CHIRURGICALĂ ÎN CANCERELE GENITO-MAMARE (Audio-Video Zoom)

    Deputat Prof. Dr. Patriciu Achimaş-Cadariu, președintele Grupului pentru combaterea cancerului din Parlamentul României, Comisia pentru Sănătate şi Familie din Camera Deputaților

    08.55 – 09.15 CONȘTIENTIZAREA CANCERULUI HEPATIC ȘI IMPORTANȚA DIAGNOSTICULUI PRECOCE

    Dr. Răzvan-Adrian Negreanu, medic specialist oncolog – Spitalul Clinic Colțea, București

    09.15 – 09.35 ACCESUL LA SERVICII DE RADIOTERAPIE

    Dr. Cătălin Iacob, medic primar radioterapie, medic specialist oncologie medicală, șef secție MedEuropa Brașov

    09.35 – 09.55 ACREDITAREA SERVICIILOR MEDICALE, O SPERANȚĂ ÎN VIAȚA PACIENȚILOR CU CANCER

    Dr. Sorin Ungureanu, Autoritatea Națională de Management al Calității în Sănătate

    09.55 – 10.15 CHIRURGIA ROBOTICĂ, MINIM INVAZIVĂ, ÎN CANCERELE PULMONARE

    Dr. Mugur Bosânceanu, medic primar Spitalul de Oncologie Monza

    10.15 – 10.25 PAUZA DE AERISIRE
    10.25 – 10.45 TESTAREA COMPREHENSIVĂ GENOMICĂ: UN PAS ÎNAINTE SPRE MEDICINA PERSONALIZATĂ

    Dr. Mircea Gongu, Medic Primar Oncologie Medicală, Coordonator Departament Oncologie MedEuropa București

    10.45 – 11.05 PACIENȚII ONCOLOGICI, VICTIME COLATERALE PANDEMIEI SARS-COV-2

    Cezar Irimia

    11.05 – 11.25 CE OPORTUNITĂȚI EXISTĂ PENTRU A SE IMPLICA ȘI A-I AJUTA ȘI PE ALȚII ÎN COMUNITATE

    Prof. Dr. Cristina Ștefan

    Institutul Oncologic Prof. Dr. Alexandru Trestioreanu, București

    11.25 – 11.45 ONCOMPASS MEDICINE, PROGRAMUL DE ONCOLOGIE DE PRECIZIE

    Dr. Fejer Eniko Reka, medic primar oncologie medicală

    11.45 – 12.00 Sesiune de întrebări și răspunsuri

    12.00 – 14.00 PAUZA

    Sesiunea de după-amiază

    14.00 – 14.20 PLANUL NATIONAL DE CANCER

    Discuții Libere – Cezar Irimia

    14.20 – 14.40 CONSILIERE SI NAVIGAREA PE TOT PARCURSUL TERAPEUTIC AL PACIENTULUI ONCOLOGIC

    Dr. Antoanela Pop, FABC

    14.40 – 15.00 NUTRIȚIA PACIENTULUI ONCOLOGIC

    Dr. Raluca Bârzu, FABC

    15.00 – 15.20 ECHILIBRUL EMOȚIONAL ÎN VIAȚA PACIENTULUI ONCOLOGIC, O CONDIȚIE ESENȚIALĂ ÎN MANAGEMENTUL BOLII

    Psiholog Nicoleta Pascu, FABC

    15.20 – 15.40 PRESCRIPȚIILE OFF-LABEL, ASPECTE PRACTICE

    Conf. Univ. Av. Dr. Dan Cimpoeru

    15.40 – 15.50 Pauza
    15.50 – 16.10 IMPORTANȚA HOMEDELIVERY (DISTRIBUIREA TRATAMENTELOR ACASĂ LA PACIENT) PENTRU CREȘTEREA ADERENTEI ȘI COMPLIANȚEI LA TRATAMENT

    Bogdan Tuica, Manager Proiecte Speciale, Europharm Holding

    16.10 – 16.30 ABORDAREA HOLISTICĂ ÎN ÎNGRIJIREA PALIATIVĂ

    Nicoleta Mitrea, Hospice Casa Speranței Brașov

    16.30 – 16.50 APLICARE CHESTIONAR ÎN SISTEM TELEVOTING PE MAI MULTE SUBIECTE DE INTERES PENTRU PACIENȚI ȘI DISCUȚII LIBERE PE BAZA REZULTATELOR www.vot.fabc.ro
    16.50 – 17.00 Sumarizare, încheierea lucrărilor

    [/fusion_text][fusion_separator style_type=”default” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” flex_grow=”0″ top_margin=”” bottom_margin=”” width=”” alignment=”center” border_size=”” sep_color=”” icon=”” icon_size=”” icon_color=”” icon_circle=”” icon_circle_color=”” /][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” content_alignment_medium=”” content_alignment_small=”” content_alignment=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” font_size=”” fusion_font_family_text_font=”” fusion_font_variant_text_font=”” line_height=”” letter_spacing=”” text_transform=”none” text_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    OncoPlanificarea – sustinerea persoanelor cu cancer – TABLETOP MEDIA BRIEFING

    Cezar Irimia, Gabriela Trifon, reprezentanți mass-media

    [/fusion_text][/fusion_builder_column][/fusion_builder_row][/fusion_builder_container]

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    Speranța de viață sănătoasă e un indicator pe care nu-l ignoră nicio economie serioasă. Astfel încât orice investiție în sistemul de Sănătate e, de fapt, o investiție în creșterea competitivității economiei.

    Atunci când vorbim de ”cheltuieli de Sănătate”, vorbim, de fapt, de investiții: cheltuielile reale sunt cele cu boala, cu scăderea capacității de muncă și cu ieșirea salariaților din viața ocupată – toate acestea pe o piață a muncii deficitară și foarte tensionată.

    Cum putem lua în serios investițiile în sănătate, măcar cât o facem cu investițiile în tehnologie, cu investițiile străine și cu cele în pregătirea profesională? Oficiali decidenți de la Ministerul Sănătății și cel al Finanțelor, alături de autorități locale, economiști și  reprezentanți ai industriei Sănătății discută la conferința CursDeGuvernare despre impactul investițiilor în sănătatea populației asupra economiei și a pieței muncii. Vă invităm la

    CONFERINȚA LIVE ONLINE

    Sănătatea – sursă de competitivitate:

    Investiția în sistemul sanitar și aportul vieții sănătoase la economie

    marți, 14 septembrie 2021, orele 15:00 – 17:30

    pe CursDeGuvernare.ro, Facebook și YouTube

    Speakerii:

    • Vass LEVENTE, secretar de stat la Ministerul Sănătății
    • Dan VÎLCEANU, Ministrul Finanțelor (tbc)
    • Adela COJAN, Vicepreședintele Casei de Nationale de Asigurări de Sănătate (tbc)
    • Dr. Gheorghe CARP, senator
    • Clara VOLINTIRU, conf. univ. dr., academia de studii economice din București
    • Kostas PAPAGIANNIS, managing director, MSD Romania (intervenție în limba engleză)
    • Radu COMȘA, expert consultant în politici de sănătate
    • Carmen USCATU, fondator Asociația Dăruiește Viață
    • Ștefana MIHĂILESCU, Training Manager, Raiffeisen Bank
    • Dan ZAHARESCU, director executiv, ARPIM
    • Moderator: Marius GEANTĂ, Președinte și co-fondator al Centrului pentru Inovație în Medicină

    Partener principal:

    MSD

    Parteneri:

    Asociația Română a Producătorilor Internaționali de Medicamente (ARPIM),

    Raiffeisen Bank

    Parteneri de comunicare:

    Avocatnet.ro

    Autoritatea Națională de Management al Calității în Sănătate ANMCS

    Raportuldegardă.ro

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  • Ziua Mondiala de Lupta Impotriva Cancerului 2021

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    CUM SE DESFAȘOARĂ ACUM

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    În data de 12 decembrie, începând cu ora 10, a avut loc o discuție în direct pe platforma Zoom și Facebook despre sumarizarea tuturor aspectelor ce au fost specifice acestui an, care au fost problemele și cum va arăta oncologia în 2021 – ce soluții sunt pentru îmbunătățirea traseului terapeutic al pacientului cu cancer (acces la investigații, diagnostic rapid, acces la terapie, recuperare, reechilibrare emoțională). În încheierea acestui an, am trecut in revista acțiunile realizate de Federația Asociațiilor Bolnavilor de Cancer pentru pacienții cu cancer.

    Toți cei care s-au inscris la aceasta activitate, au primit din partea FABC un pachet cu materiale informative, sperăm noi util! Și de această dată, pacienții au avut posibilitatea de a interacționa cu specialiștii invitați, de a adresa întrebări și de a prezenta problemele generale cu care s-au confruntat!

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    OBIECTIVE

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    • Presiune asupra decidenților din sănătate privind rezolvarea carențelor din programul național de oncologie și a problemelor cu care se confruntă pacienții.
    • Întărirea convingerii pacienților că nu sunt singuri și că sunt reprezentați și susținuți la nivel național de o forță – FABC.
    • promovarea FABC și a asociațiilor membre.
    • Conștientizarea supraviețuitorilor asupra importanței asociațiilor pacienților.
    • Creşterea numărului de membri la nivelul organizațiilor.
    • Conștientizarea instituțiilor statului și a opiniei publice asupra importanței și rolului asociațiilor de pacienți.
    • Întărirea alianțelor medici-pacienți, ca un prim pas către normalitate.
    • Sprijinirea pacienților in accesarea asociațiilor de pacienți.

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    ISTORIC

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    Ziua Supraviețuitorului de Cancer este un eveniment ce marchează celebrarea deciziei de a trăi, de a lupta împotriva resemnării și a efortului imens pentru a învinge această boală gravă. Evenimentul a avut loc în premieră la Brașov în 19 decembrie 2004.

    Perioada de pandemie, prin restricțiile impuse, desocializează, tensionează și scade aderența la tratamente a pacienților cu cancer. Conform tradiției, am hotărât ca și în acest an să marcăm Ziua Supraviețuitorului de Cancer, și ca aceasta să se desfășoare online, cu susținerea pacienților care se înscriu, prin oferirea unui cadou drept mulțumire pentru lupta lor.

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    PACIENȚII CU CANCER, VICTIMELE COLATERALE PANDEMIEI COVID

    În perioada 30-31 octombrie a avut loc cea de-a douăsprezecea ediție a Conferinței Naționale a Federației Asociațiilor Bolnavilor de Cancer din România, eveniment care s-a desfășurat în mediul online. La discuții au participat peste 150 de pacienți cu diverse forme de cancer, specialiști și reprezentanți ai autorităților (Administrația Prezidențială, Casa Națională de Asigurări de Sănătate, managerii centrelor regionale de oncologie, ai clinicilor de radioterapie, Institutului Marius Nasta, Societății Medicilor de Familie, specialiști în domeniul juridic, psihologic, nutrițional, ehealth).

    În cadrul discuțiilor purtate pe parcursul celor două zile, pacienții oncologici au adus în atenție o serie de probleme cu care se confruntă în ultimele opt luni (de la debutul pandemiei în România), probleme care, din nefericire, nu sunt unele noi ci doar acutizate în actualul context.

    Potrivit președintelui Federației Asociațiilor Bolnavilor de Cancer din România, Cezar Irimia, această listă de probleme este una consistentă, pacienții reclamând aspecte grave atât în privința accesului la investigații cât și la terapii. Aceștia consideră că majoritatea acestor probleme nu sunt cauzate neapărat de pandemie cât de sistemul de sănătate, indiferent că este public sau privat. O centralizare a nemulțumirilor exprimate de pacienți dezvăluie existența unor grave disfuncționalități precum nedecontarea analizelor privind markerii tumorali (ceea ce presupune cheltuieli mari din partea pacienților), lipsa gratuității pentru medicamentele conexe terapiei oncologice, accesul foarte greu la investigații tip CT/RMN decontate în baza biletelor de trimitere (intervalul de așteptare fiind de 6-8 luni), lipsa medicamentelor oncologice specifice (ceea ce agravează starea pacienților) dar și a specialiștilor din sistem, ceea ce îngreunează mult adresabilitatea (la ușile cabinetelor se așteaptă între 8 și 12 ore pentru o consultație!).

    Pacienții și-au mai exprimat nemulțumirea cu privire la problemele ce vizează emiterea biletelor de trimitere și a rețetelor și accesarea serviciilor decontate de casele județene de asigurări de sănătate, la fondurile insuficiente alocate acestora în raport cu necesarul,  ambiguități sau condiții mult prea restrictive la pacienții care au nevoie de încadrare într-un grad de handicap.

    Au mai fost semnalate, de asemenea, dificultăți majore în comunicarea cu personalul medical, fără ca acest lucru să aibă legătură doar cu actualele condiții creeate de contextul pandemic. Dificultăți care se referă nu numai la adresabilitate ci și la explicațiile și răspunsurile pe care pacienții le așteaptă de la medici cu privire la afecțiunea lor. Un fapt deosebit de grav semnalat de o parte dintre pacienți este acela că încă mai există cazuri în care, pentru a se putea continua traseul terapeutic, se sugerează oferirea de recompense materiale personalului sanitar.

    Dubla taxare a serviciilor medicale este un alt aspect care îi nemulțumește pe pacienți. Acest lucru se referă la faptul că, deși sunt plătitori de contribuții la bugetul de stat, adesea sunt nevoiți să suporte costurile investigațiilor, procedurilor sau medicamentelor auxiliare.

    Lipsa de organizare de la nivelul spitalelor care efectuează testări COVID – ceea ce îngreunează accesul pacienților oncologici -, discriminarea față de pacienții infectați cu COVID – care au prioritate în fața celor oncologici – sau întreruperea tratamentelor pacienților oncologici infectați cu COVID fără o argumentare științifică, toate acestea creează premisele transformării acestora în victime colaterale ale pandemiei.

    Există însa și o veste bună: Casa Națională de Asigurări de Sănătate a anunțat că investigația paraclinică privind markerii tumorali în stabilirea terapiei oncologice țintite va intra în procesul de decontare, în acest moment căutându-se soluții financiare. De asemenea, CNAS a suplimentat și valorile contractuale privind extinderea accesului la investigațiile de tip CT/PET CT/RMN.

    [/fusion_text][fusion_button link=”https://fabc.ro/comunicate/comunicat-de-presa-pacientii-cu-cancer-victimele-colaterale-pandemiei-covid/” text_transform=”” title=”” target=”_self” link_attributes=”” alignment_medium=”” alignment_small=”” alignment=”” modal=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” color=”default” button_gradient_top_color=”” button_gradient_bottom_color=”” button_gradient_top_color_hover=”” button_gradient_bottom_color_hover=”” accent_color=”” accent_hover_color=”” type=”” bevel_color=”” border_color=”” border_hover_color=”” size=”” stretch=”default” margin_top=”” margin_right=”” margin_bottom=”” margin_left=”” icon=”” icon_position=”left” icon_divider=”no” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]Comunicat de Presa – Integral[/fusion_button][fusion_button link=”https://fabc.ro/wp-content/uploads/2020/11/Agenda-Conferinta-Nationala-FABC2020-GraphDistrib-sm.pdf” text_transform=”” title=”” target=”_self” link_attributes=”” alignment_medium=”” alignment_small=”” alignment=”” modal=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” color=”default” button_gradient_top_color=”” button_gradient_bottom_color=”” button_gradient_top_color_hover=”” button_gradient_bottom_color_hover=”” accent_color=”” accent_hover_color=”” type=”” bevel_color=”” border_color=”” border_hover_color=”” size=”” stretch=”default” margin_top=”10px” margin_right=”” margin_bottom=”10px” margin_left=”” icon=”” icon_position=”left” icon_divider=”no” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]Agenda[/fusion_button][/fusion_builder_column][fusion_builder_column type=”2_5″ layout=”2_5″ align_self=”auto” content_layout=”column” align_content=”flex-start” content_wrap=”wrap” spacing=”” center_content=”no” link=”” target=”_self” min_height=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” type_medium=”” type_small=”” order_medium=”0″ order_small=”0″ dimension_spacing_medium=”” dimension_spacing_small=”” dimension_spacing=”” dimension_margin_medium=”” dimension_margin_small=”” margin_top=”” margin_bottom=”” padding_medium=”” padding_small=”” padding_top=”” padding_right=”” padding_bottom=”” padding_left=”” hover_type=”none” border_sizes=”” border_color=”” border_style=”solid” border_radius=”” box_shadow=”no” dimension_box_shadow=”” box_shadow_blur=”0″ box_shadow_spread=”0″ box_shadow_color=”” box_shadow_style=”” background_type=”single” gradient_start_color=”” gradient_end_color=”” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ background_color=”” background_image=”” background_image_id=”” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=”” filter_type=”regular” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ last=”true” border_position=”all” first=”false”][fusion_title title_type=”text” rotation_effect=”bounceIn” display_time=”1200″ highlight_effect=”circle” loop_animation=”off” highlight_width=”9″ highlight_top_margin=”0″ before_text=”” rotation_text=”” highlight_text=”” after_text=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” content_align_medium=”” content_align_small=”” content_align=”left” size=”3″ font_size=”” animated_font_size=”” fusion_font_family_title_font=”” fusion_font_variant_title_font=”” line_height=”” letter_spacing=”” text_shadow=”no” text_shadow_vertical=”” text_shadow_horizontal=”” text_shadow_blur=”0″ text_shadow_color=”” margin_top_medium=”” margin_bottom_medium=”” margin_top_small=”” margin_bottom_small=”” margin_top=”30px” margin_bottom=”30px” margin_top_mobile=”” margin_bottom_mobile=”” text_color=”” animated_text_color=”” highlight_color=”” style_type=”underline dotted” sep_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    Inregistrare 30 octombrie

    [/fusion_title][fusion_title title_type=”text” rotation_effect=”bounceIn” display_time=”1200″ highlight_effect=”circle” loop_animation=”off” highlight_width=”9″ highlight_top_margin=”0″ before_text=”” rotation_text=”” highlight_text=”” after_text=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” class=”” id=”” content_align_medium=”” content_align_small=”” content_align=”left” size=”3″ font_size=”” animated_font_size=”” fusion_font_family_title_font=”” fusion_font_variant_title_font=”” line_height=”” letter_spacing=”” text_shadow=”no” text_shadow_vertical=”” text_shadow_horizontal=”” text_shadow_blur=”0″ text_shadow_color=”” margin_top_medium=”” margin_bottom_medium=”” margin_top_small=”” margin_bottom_small=”” margin_top=”30px” margin_bottom=”30px” margin_top_mobile=”” margin_bottom_mobile=”” text_color=”” animated_text_color=”” highlight_color=”” style_type=”underline dotted” sep_color=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]

    Inregistrare 31 octombrie

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